We saw the urologist today. He informed us that nothing could be done for Elijah's bladder. It will not function again, in his opinion. Although, we don't know precisely what caused this, there isn't anything that will "fix" it. So, this means that we will keep in the foley catheter between now and Monday, when they will be doing the cystoscopy. The purpose of which is to determine that the path is clear for cathertization. The doctor will change the cath while Elijah is knocked out.
Then, on Wednesday, Scott and I will begin training to cath him at home. Then, we will start intermittent cathertization three times a day. Yeah, we're not excited about this either. Although I'm not sure what bothers me more, the idea of doing it or the idea that in the not too distant future, this will all seem normal and okay. Because this isn't the normal we expected or hoped for. In fact it is very different from anything we anticipated just a couple of weeks ago.
And there are still a lot of questions, and unknowns and what ifs floating around, keeping me from sleeping.
Keep praying, besides the bladder spasms (which is what is causing Elijah to say "it hurts" about fifteen times a day), Elijah is actually happier with the catheter in, likely because it's a heck of a lot more comfortable than walking around with a full bladder. But on the other hand, he hates it when anyone asks about it.
We've had a disappointing and difficult day. We need rest, but it is hard when we have both Elijah and five month old (not to mention the other two) constantly demanding attention. And it's the busiest time of year for the business too - lots of long days and short nights.
Will be in deep prayer for you. I am so sorry...so much. The furnace can be so hot, but the result is a new creation in Christ.
ReplyDeletePraying for Elijah to have a great day of play, learning, and joy. Praying for you and Scott as you sort out this news and gain strength and clarity to do so. God be with you. Love to you.
ReplyDeleteSweet Dee Anna, I can read between the lines and hear the whys and the cries and I weep with you. You had a really difficult day. Please know that you are not alone. My prayers are for you and Scott and especially for sweet Elijah. The Jones family have been praying, we love you and are holding you all very near our hearts. There really is joy in the morning, but your right sometimes are very long. May he grant you rest, peace and hope.
ReplyDeleteLove you.